Post-Op Day 5

My babies! 💞 I got to see my babies for the first time in a week! 🥹💗 Brandon and my parents came with the kids for a visit this afternoon once I finished my first day of therapy. It’s been a very busy day, but my heart feels better after the much-appreciated distractions.

Therapies so far have been good, but tiring. Beginning Monday I will have 3 hours/day of OT and PT.

I got “fitted” for the wheelchair I will use while here, and I was cleared of speech therapy needs at this time.

Taking a few stairs during PT was scary this morning. My knee buckled coming down with the first step, so that’s going to be a big thing to work on. Today was mostly about identifying deficits and needs. Tomorrow is more of a rest day, and then therapies resume Monday. In the meantime, I have things I can do on my own to keep improving my function and mobility.

I feel really good about the rehab team here, and am looking forward to making strides towards independence again. I often feel like a helpless prisoner here. I have a bed alarm so I can’t even sit up on the edge of the bed without calling for help, can’t do anything on my own, have to ask for help for the smallest of things… mentally, it’s a big added load to everything else. Needless to say, seeing loved ones today was a great distraction from the physical and emotional pain of all of this.

All of your loving and supportive messages are so so appreciated! They lift my spirit and help me to keep pushing. I want to get home safely as soon as I can, and will do everything I need to do. But the quiet, alone time leaves a lot of space for bad thoughts to creep in. I love all the good you guys are leaving here for me, sending me, and texting me. It may not seem like much, but the encouragement and love are truly appreciated! So thank you all 💖

Sloane’s Surgery Anniversary

Today is the 3 year anniversary of Sloane’s open heart surgery. She was just 5 days old. The surgery took All day: We were one of the first families to enter the waiting room in the morning and one of the very last to leave that evening. It was undoubtedly one of the longest, most stressful days of our lives. God and her cardiology team truly worked some miracles that day! 

Getting in some kisses and snuggles before we handed Sloane over to the surgical team
Our first time seeing Sloane the evening following her surgery.

This time of year brings up a lot of intense and mixed emotions as we move through Sloane’s birthday and our various medical “anniversaries.” I am doing my best to focus on all there is to be grateful for, but it isn’t easy. Not a day goes by I don’t thank God for our amazing little girl. We are so grateful to have her in our family! Days like today just bring it top of mind more than usual.

Sloane has proven she’s one tough cookie since Day 1, and now that she’s 3… WoooWeee! 😵‍💫🫣😂 Watch out, world! This girl has opinions, a fighting spirit, and she demands to be heard! We love her and her wild spirit so very much! ❤️💝💖

🌻Cling to what is good🌻