Scan Update

I am sad (and angry) to say: Same story, different day. The scans showed new and enlarging pulmonary nodules again.

All of the nodules previously seen have grown. I also have a new one in my left lung. Previously, all of the nodules were confined to the right lung. The oncologist said there are too many now to hope for surgery as an option, unless of course I develop symptoms or there’s a direct risk to where any of them are growing. It’s sounding like all they will have to offer me is chemo if the nodules continue to grow. Unfortunately, the likelihood of chemo working isn’t great either… LMS doesn’t respond well to many chemo drugs. In fact, they don’t even offer chemo for LMS patients in some countries because the likelihood of success is so low.

The anguish is all-encompassing. I am devastated and ANGRY!!! I still cannot wrap my head around the fact that it is 2023 and we still do not have better options for cancer treatments. I have been busting my ass researching and trying all sorts of alternative therapies in the hopes that Something will work. Conventional medicine certainly doesn’t have a fix. It’s infuriating and scary as hell. It’s also incredibly disheartening to see that, despite my best efforts, the cancer continues to progress.

I know that maintaining hope through all of this is vitally important, but on days like today, I struggle to find or hold on to any.

I appreciate all of your continued prayers for me and my family. I’m going to continue researching, consulting, and experimenting, just as I have been doing. Sadly, it feels like my remaining options and time keep dwindling with each unfavorable scan result.

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